Michelle MacMeeken

Michelle Relaxing


Michelle has Erythropoietic Protoporphyria (EPP).
Michelle was diagnosed with EPP after 38 years of symptoms and pain.

Michelle was a practicing LPN who enjoyed being able to help others until she became very ill and was unable to help patients through her nursing. She was a Registered Polysomnrography Tech and was working towards obtaining a RN License.

Having a passion for helping others is what inspired Michelle to stand up for her Porphyria Family and take on a very challenging Journey of 2 months traveling the American Discovery Trail from the East Coast to the West Coast with Chance “the Porphyria Horse” and her Husband Scott.

Michelle knows this trip is going to be very challenging for her because of her Porphyria, but she is willing to sacrifice for her Porphyria Family.


Michelle’s responsibilities for the Shadow Ride include:

  • Organizing Committee
  • Planning Commitee
  • Public Relations
  • Media and Social Media


Ride Duties Include:

  • Medical/Safety Support
  • Transportation
  • Camp Support
  • Public Relations
  • Social Media Engagement