A Cowboy Love Story

 A Cowboy Love Story    What better story than a cowboy love story? And this love story is the REASON for the Shadow Ride. 

Scott and Michelle1Cowboy, Scott MacMeeken fell in love and married his beautiful bride, Michelle. All was great except Michelle has Erythropoietic Protoporphyria  (EPP).  Since Scott couldn’t change her EPP, he conceived of the Shadow Ride, a horseback adventure to enhance awareness about porphyria across the small and big cities of America and to ask all of you to join them along the way. The Shadow Ride is a horseback ride that will eventually track across the American Discovery Trail starting in 2016, but the 2015 Kick Off ride will be held in Oklahoma near Tulsa, on the prominent Hull and Drummond ranches and will be followed by a national patient meeting in Oklahoma City in April, 2015.  Soon thereafter, we will host a patient education meeting in Oklahoma City with renowned porphyria expert, Dr. Sylvia Bottomley. She will be making a presentation about porphyria and answering your questions at the Patient Meeting. Dr. Bottomley has been a major force in the pophyrias for decades.  In fact, she wrote the most recent porphyria chapter in the prestigious Winthrops Medical Textbook.  Dr. Bottomley can be seen, too, in the Porphyria Live DVD, that can be purchased on the APF website or received free with each donation.  Attending a Patient Education Meeting is a great way to learn from and teach others with porphyria. 

You will receive a notice with all the details of the ride and the National Patient Meeting.  With a $30 donation to the APF, you can purchase a Shadow Ride T-Shirts with above logo. 

Contact the APF to order your T-Shirts with a $30.00 donation.  Your donations will support the physician education program.  Drag out your cowboy hats and boots and join the Partner Round Up.  If you are willing to help with the Oklahoma City meeting or the Kick Off ride, please contact the APF.  Toll free: 1.866.APF.3635.


Original post: http://www.porphyriafoundation.org/content/reason-shadow-ride